| Traumatic Brain Injury - Tips for Parents |
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While each TBI case is unique, parents should remember that there are many resources available for both children and families working with TBI students. Because of the nature of TBI, sharing information among the various teachers and other professionals involved with your child is particularly important Here are some strategies that can help.
Work with the medical team to understand your child's injury and treatment plan. Don't be shy about asking questions. Tell them what you know or think. Make suggestions. Keep track of your child's treatment. A 3-ring binder or a box can help you store this history. As your child recovers, you may meet with many doctors, nurses, and others. Write down what they say. Put any paperwork they give you in the notebook or throw it in the box. You can't remember all this! Also, if you need to share any of this paperwork with someone else, make a copy. Don't give away your original! Talk to other parents whose children have TBI. There are parent groups all over the U.S. Parents can share practical advice and emotional support. Call NICHCY (1-800-695-0285) to find out how to find parent groups near you. If your child was in school before the injury, plan for his or her return to school. Get in touch with the school. Ask the principal about special education services. Have the medical team share information with the school. When your child returns to school, ask the school to test your child as soon as possible to identify his or her special education needs. Meet with the school and help develop a plan for your child called an Individualized Education Program (IEP). Keep in touch with your child's teacher. Tell the teacher about how your child is doing at home. Ask how your child is doing in school. Adapted from information published by the National Information Center for Children and Youth with Disabilities |
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